Dear Eli, The other night, Daddy and I got home from our date with the Hathcocks. Your little sisters were still awake and wouldn't go to sleep without a story. Well, I definitely had a story to tell. This is what I told them: Once upon a time (all good stories start like this), a …
Tag: highway hazards
Raindrops and Rainbows
View as we drove away from radiation treatment As Eli and I were driving home from the couple of appointments he had today, we were greeted by pouring rain, pounding hail, thundering lightning, glowing sunshine, and a stunning rainbow. As I pondered the visits with doctors and staff, I realized the weather was a perfect …
Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #6
And...the snorkeling excursion in the Keys was cancelled. The weather actually ended up being very nice, but I guess the wind was incompatible with the boat ride. However, they said we could still rent the gear and snorkel in the lagoon. So that's what we did. Eli was in a bad mood, so I don't …
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Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #5
Sunday was our day to relax. Our plan was to do a dinner/ riverboat cruise in the evening, but the rest of the day was open to recharge from the past few days of activities. Eli decided extra time in the pool was what he needed. Ella and Eli as seen from our room's balcony …
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Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #4
9:13 am- Today's itinerary is: 1-Pick up breakfast at Wendy's, 2-Pick up swim floaties and water at Walmart, 3-Drive to the Everglades for an airboat tour, 4-Figure out the rest later. Eli has been Mayreen's favorite nephew since he was 4 years old Not every day you pass an alligator on the road. The Everglades, …
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Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #3
On the agenda for today was snorkeling near Fort Lauderdale, but it was too windy and it was cancelled. Mayreen and I did some searching for a plan B, and Mayreen (a.k.a. "Ant May May", yes I know it's usually spelled "Aunt", but Eli doesn't know that and Mayreen really loves to be called Ant) …
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Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #2
Florida is wet. Very, very wet. It reminds me of Panama, sudden downpours mixed with sunshine. Kinda like my life the last couple years, actually. But I digress. We started the day checking out of the hotel, since the plan, after spending the day at Universal Studios, was to drive back south to our next …
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Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #1
We spent the day flying across the country, complete with Eli's duct tape and paracord (who knows when you need to escape in a pinch). In fact, we were on the verge of whipping out the adventuring supplies when we had to evacuate the rental car facility. After the suspicious activity was dealt with, we …
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Best dressing ever
Since we were getting the MRI at a hospital that may or may not have nurses capable of accessing Eli's port, we had home health come and do it at home. It went well and the nurse left. Quite soon, though, Eli started complaining that it hurt. I tried to get a sense of the …
Unfilled prescriptions and Unclaimed Furniture
Today has been a bad day for me from an administrative perspective. One of the things that I learned about dealing with a long term, intensive health care problem is that one of my main jobs is health care administration: making sure doctors put in the proper orders to the proper places, knowing the specs …
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