I know you have been on pins and needles waiting for me to let you know what happened after the MRI broke. After the staff person told me that the MRI machine wouldn't come back up, the first thing I told her was that maintenance, routine or otherwise, should always be done at the end …
Since we were getting the MRI at a hospital that may or may not have nurses capable of accessing Eli's port, we had home health come and do it at home. It went well and the nurse left. Quite soon, though, Eli started complaining that it hurt. I tried to get a sense of the …
Well, the PET/CT scanner was repaired in time, but Eli lost track of the need to not eat before the scan and took a few bites of a snack. The scan has been rescheduled for next Wednesday. The positive news is that we can't feel the swollen lymph node anymore, so it was probably just …
This is end of treatment scan week. Murphy's Law seems hard at work. To start, I've been a little more anxious than last time and my usual equilibrium hasn't been as stable as I like. As with past scans, I've been avoiding making scheduling decisions for a couple weeks until I have the reassurance that …
Eli has had many interesting conversations with the various health care staff since this journey began. Whether he is instructing the nurses in proper port access procedure, texting riddles to his surgeon, teaching card tricks to the health tech, sending treats and notes to the lab, trying to stump the radiation oncologist, or giving feedback …
