Usually Eli sees the doctor the most, any given week, although it's usually only once or twice. Last week, he saw the radiologist, then had an MRI on a separate visit, so score 2 for Eli. I followed up with the doctor for the latest tendonitis incident, then went to physical therapy twice, so score …
Today has been a bad day for me from an administrative perspective. One of the things that I learned about dealing with a long term, intensive health care problem is that one of my main jobs is health care administration: making sure doctors put in the proper orders to the proper places, knowing the specs …
Continue reading Unfilled prescriptions and Unclaimed Furniture
Eli has been requesting that I post photos of his stitches, so I took a few at our radiation mapping appointment earlier this week. We met with the radiation team to get Eli prepped for radiation, which begins in a little over a week. First, they put a gel like thing on the bottom of …
Eli asked me yesterday what he can do now that he's in a wheelchair. Well, today he can watch a lunar eclipse.
The original plan was to stay the night at the hospital to ensure pain was manageable before going home. However, Eli had other plans. With a nerve block in place, his need for meds was minimal and he just wanted to go home. We all wanted to go home. So, that's what we did. After …
Warning: graphic photos If surgery photos bother you, don't scroll too far. I'll put graphic photos at the end of the post, following the picture of Eli and the birds. We were up not as bright and early as we should have been, since we had to deal with rush hour traffic, but once we …
I've been playing basketball with some ladies in the neighborhood. It's been fun and gets my heart rate going. Last night, my upper right arm/shoulder was a little sore by the end of the game, so I had Adam massage it a little before going to bed. I woke up around 2am in a lot …
We met with Eli's surgeon yesterday to discuss the foot tumor resection. He showed us scans from November And one from a couple weeks ago: The white blob between the 4th & 5th metatarsals is the tumor. Chemo has done a good job of shrinking it. Yay! The surgeon will remove what's left of it …
After spending the last couple weeks praying that Eli's foot tumor would shrink all the way or enough that it could be resected, I heard from the radiation oncologist that the tumor has shrunk enough that the surgeon would like to resect it. This will reduce the radiation dosage needed by 40%. Yay!
One of the things we learned the week of Eli's diagnosis was that any child, within a certain age range, who is diagnosed with cancer, regardless of whether it's terminal, qualifies to receive a wish from the Make-a-Wish foundation. Even before his diagnosis was official, Eli learned that if he had cancer, he would get …
Eli The Boss 