I clearly have difficulty posting news in a timely manner. Last post involved the long wait for Eli's MRI. I expected about 3 hours, but it took 3 1/2--poor kid! He had just managed to test ready for his chemo to begin when they took him back for the MRI and by the time he …
Month: May 2019
More Scans
I am in a couple cancer related support groups on Facebook. One is for moms of kids with cancer, Momcology. The other is a group specific to Eli's type of cancer, Rhabdomyosarcoma. One common theme that comes up is something the parents in these groups call "scanxiety", the anxiety felt while waiting for the outcome …
Aang
Eli's wish to experience the gravity of the moon (and weightlessness) via a parabolic flight was approved. The approval was revealed through a fun scavenger hunt, thanks to #RediscoverDiscoveryPark in Pleasant Grove, Utah. The whole family had fun while Eli, dressed as Aang, gathered Avatar themed clues (air, earth, water, fire). See this Facebook post …
Success
Eli is now an expert in taking Irinotecan. He didn't have to retake the first dose since it had been over 30 minutes from when he took it to when he first threw up. The rest of the doses last week stayed down. 😀 However, I am so tired of this particular med that I …
Eli The Boss 