When Eli had his biopsy to confirm his cancer diagnosis, the surgeon put in a port. It is a device inserted under the skin through which his chemotherapy medications can be administered. It can also be used for imaging contrast, which is what we are using it for today for an MRI that will help …
Month: December 2018
Pets and More
Adam and I aren't pet people. I always feel the need to wash my hands after touching an animal or being touched by one and I don't like pet hair on my clothes or furniture or food. The older I get, the more I dislike being around animals. However, my kids don't feel the same. …
The Joys of Radiation
Today we got to meet the radiation oncologist. I just don't know what else to say. It's a necessary part of Eli's treatment which we'll start later in January and it will continue for about 5-6 weeks. Every weekday, except holidays. That will be thrilling-oh joy of commuting to Salt Lake City every day.The upsides: …
Candy
Thanks to one of Adam's coworkers, Eli has a regular supply of candy, some of which he brought to his clinic appointment today (notice the boxes on his head and hands). When the nurse let Eli send his labs, Eli decided to share his candy with the people in the lab. He also wrote them …
Life 1, Mom 29, Adam 3 or 32
Saturday was the one month anniversary of the official diagnosis of alveolar Rhabdomyosarcoma. Eli started chemo treatments November 2nd, so I've been doing all the things I'm supposed to do to give Eli a fighting chance. I give myself a point for every day I gave him his meds, checked his temperature, took him to …
Eli 5, Rhabdo 1
Don't let his smile fool you. Eli is holding a syringe to dispense oral meds, which is how he took last week's chemo. He hates liquid oral meds, so we practiced with orange juice, so he could figure out the best way to take the very bitter chemo with as little tasting as possible. It …
Eli The Boss 