Eli is pretty amazing. His three weeks of daily radiation began on Monday. He's really had a great attitude about it. He had a few hard days in August, but once he arranged for regular VR play time while at Primary Children's for clinic visits, he's been much happier. Before one of his trips up …
After a recent conversation with our team at Primary Children's, they recommended getting a second opinion, so arrangements were made to meet with the doctors at Children's Hospital of Los Angeles. That is what we are doing today, the last day of our visit with my sister Mayreen. Other than confirming Eli's prognosis and having …
While camping at the beach at South Carlsbad, as per one of Eli's requests, see wish #4, Eli decided he wanted a leaf from a palm tree, see wish #31. However, the rules at the campground didn't allow for tampering with the vegetation, so we didn't let him keep the palm leaf he had pulled …
Cycle 1 After three weeks of Eli's new medication, he will get to take a break from it for a week. This medication is given in 28 day cycles: 21 days on, 7 days off, and will repeat until it stops working. Within a week of starting Stivarga/Regorafenib, Eli could tell his thigh tumor was …
We usually think of being photogenic as looking good on camera. What do you call someone who looks good on scans? Eli is having his MRI now and negotiated with the nurse when she would put in his IV for the contrast. During said negotiations, she mentioned how good he is at getting his MRIs. …
