Eli's bucket list Progress has been made on the list of things Eli wants to do as well as on his workshop, courtesy of Make-A-Wish. While they are providing the structure and many of the accoutrements Eli wants on the inside, they do have a budget, so not everything he wants will be included. Ground …
While waiting for test results to guide our treatment decision making, we have been making progress on Eli's list of things he wants to do. Basically it's his bucket list, which, as it so happens, I had the foresight to start work on many months ago, since, it appears, foresight as to where this journey …
Coming out of anesthesia Even though there is no intent to cure, there are still treatment options that may help keep the cancer at bay or slow progression. In order to determine what options may help, Eli's arm tumor is being sent for genetic testing. It will probably have the same genetic makeup as his …
Years ago, when Eli was four years old, I had a sewing client who needed a dress altered for her niece. Her niece had recently died from brain cancer and the white dress they wished to bury her in was too big. I remember feeling so sad for the family who had to bury their …
A conversation with Eli's doctor over the weekend verified that they had come to the same conclusion we had: Eli's cancer is back and metastasized. The MRI was sufficiently definitive. We are now doing the PET/CT, which will tell us to what extent it has metastasized. We know it's in his arm, thigh, and foot, …
