Someone posted this article yesterday in a Facebook group I am in. The gist of it is that there is a medication used to treat breast cancer by turning off the PAX3:FOXO1 genes, which also cause cancer in some kids with alveolar Rhabdomyosarcoma. On Monday, the doctor said Eli is FOXO1 positive. When I asked …
Month: November 2018
The good, the bad, and the meeting?
Today was treatment day and, since I was out of town for the last treatment, I had lots of questions about his MRI reports, paperwork for a study he'll be in, and his future radiation treatments, among other things. The good: Eli's WBC count was up since last time, yay! His platelets were closer to …
I am grateful for…
Family and Friends. This week is an example of what it has been like since the day in the ER. You may notice that I haven't used many names to identify people, partly to respect privacy and partly so people don't feel like I don't appreciate the service they've given to our family. I was …
Picture perfect
With the developing bald spots, I decided yesterday morning to reschedule the photo shoot I had planned. My friend was going to trim Eli's hair this weekend, but that was looking like it wouldn't be soon enough. So, I trimmed it myself and scheduled the photo shoot for 1pm in the afternoon. It looks like …
