Dear Eli, The other night, Daddy and I got home from our date with the Hathcocks. Your little sisters were still awake and wouldn't go to sleep without a story. Well, I definitely had a story to tell. This is what I told them: Once upon a time (all good stories start like this), a …
And...the snorkeling excursion in the Keys was cancelled. The weather actually ended up being very nice, but I guess the wind was incompatible with the boat ride. However, they said we could still rent the gear and snorkel in the lagoon. So that's what we did. Eli was in a bad mood, so I don't …
Continue reading Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #6
Sunday was our day to relax. Our plan was to do a dinner/ riverboat cruise in the evening, but the rest of the day was open to recharge from the past few days of activities. Eli decided extra time in the pool was what he needed. Ella and Eli as seen from our room's balcony …
Continue reading Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #5
9:13 am- Today's itinerary is: 1-Pick up breakfast at Wendy's, 2-Pick up swim floaties and water at Walmart, 3-Drive to the Everglades for an airboat tour, 4-Figure out the rest later. Eli has been Mayreen's favorite nephew since he was 4 years old Not every day you pass an alligator on the road. The Everglades, …
Continue reading Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #4
On the agenda for today was snorkeling near Fort Lauderdale, but it was too windy and it was cancelled. Mayreen and I did some searching for a plan B, and Mayreen (a.k.a. "Ant May May", yes I know it's usually spelled "Aunt", but Eli doesn't know that and Mayreen really loves to be called Ant) …
Continue reading Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #3
Today has been a bad day for me from an administrative perspective. One of the things that I learned about dealing with a long term, intensive health care problem is that one of my main jobs is health care administration: making sure doctors put in the proper orders to the proper places, knowing the specs …
Continue reading Unfilled prescriptions and Unclaimed Furniture
Warning: graphic photos If surgery photos bother you, don't scroll too far. I'll put graphic photos at the end of the post, following the picture of Eli and the birds. We were up not as bright and early as we should have been, since we had to deal with rush hour traffic, but once we …
I've been playing basketball with some ladies in the neighborhood. It's been fun and gets my heart rate going. Last night, my upper right arm/shoulder was a little sore by the end of the game, so I had Adam massage it a little before going to bed. I woke up around 2am in a lot …
We met with Eli's surgeon yesterday to discuss the foot tumor resection. He showed us scans from November And one from a couple weeks ago: The white blob between the 4th & 5th metatarsals is the tumor. Chemo has done a good job of shrinking it. Yay! The surgeon will remove what's left of it …
After spending the last couple weeks praying that Eli's foot tumor would shrink all the way or enough that it could be resected, I heard from the radiation oncologist that the tumor has shrunk enough that the surgeon would like to resect it. This will reduce the radiation dosage needed by 40%. Yay!
Eli The Boss 