Me waiting while Adam is taken to imaging When I was writing the last post, I was sitting in the emergency department at our local hospital with Adam, trying not to use all my phone battery. It was Friday and the day had started off pretty typically. At 8am my alarm went off reminding me …
Month: September 2020
Time for another post
Eli is pretty amazing. His three weeks of daily radiation began on Monday. He's really had a great attitude about it. He had a few hard days in August, but once he arranged for regular VR play time while at Primary Children's for clinic visits, he's been much happier. Before one of his trips up …
Second Opinion & Clinical Trials
After a recent conversation with our team at Primary Children's, they recommended getting a second opinion, so arrangements were made to meet with the doctors at Children's Hospital of Los Angeles. That is what we are doing today, the last day of our visit with my sister Mayreen. Other than confirming Eli's prognosis and having …
#4 & #31 Pom Pom Forest
While camping at the beach at South Carlsbad, as per one of Eli's requests, see wish #4, Eli decided he wanted a leaf from a palm tree, see wish #31. However, the rules at the campground didn't allow for tampering with the vegetation, so we didn't let him keep the palm leaf he had pulled …