Eli's wish to experience the gravity of the moon (and weightlessness) via a parabolic flight was approved. The approval was revealed through a fun scavenger hunt, thanks to #RediscoverDiscoveryPark in Pleasant Grove, Utah. The whole family had fun while Eli, dressed as Aang, gathered Avatar themed clues (air, earth, water, fire). See this Facebook post …
Success
Eli is now an expert in taking Irinotecan. He didn't have to retake the first dose since it had been over 30 minutes from when he took it to when he first threw up. The rest of the doses last week stayed down. 😀 However, I am so tired of this particular med that I …
Crash and Burn (part 2) or Rising from the Ashes
Eli opted for Irinotecan in cranberry juice. After consulting with the pharmacist, I prepared the supplies, but forgot put on gloves until I was in the middle of adding half of the syringe of medication into 30 ml (2 tablespoons) of the juice, but I pressed forward. While swirling the contents to try and mix …
Continue reading Crash and Burn (part 2) or Rising from the Ashes
Crash and Burn
I lost my superpowers last week. They just disappeared (Elizabeth! Did you take them?!?). This all resulted in a mom fail. Remember when I was on fire? Not so much anymore. This is bee sting med week. Eli has agreed to try mixing his med with something to mask the taste. We had previously tried …
Pain beads
Eli earned a pain bead today. In addition to physical therapy, the home health nurse came to draw blood. When she accessed his port, Eli told her that she put the needle in wrong (it didn't look quite right to me, either), so she tried again. I thought it looked good, but when she tried …
On Fire
Somehow we ended up with an extra early appointment today, so we had to leave a little after 6am. For whatever reason, I tend to forget to put numbing cream on Eli's port before we leave for his chemo treatment, but usually he reminds me. Today, though, I remembered. After I was ready to go, …
Another post
We're doing another overnight treatment and the surgeon came by to check on Eli's foot. It is doing well enough that Eli can start, slowly, putting weight on his foot without boot. Yay! Eli has also been requesting that I advertise his stuffed animal repair business. With his increased mobility, he is offering pickup of …
Red foot
This morning Eli complained that his foot was aching and red, so I texted a picture to the surgeon who had us come in so he could check him out. The diagnosis was either late effects from radiation or cellulitis, an infection. So antibiotics were prescribed as a precaution. I had planned to spend the …
Left foot, left foot, left foot right
I've been feeling worn out the last couple weeks, so I'm behind on some of the goings on in Eli's treatment. The week of March 4th, Eli got to see doctors from each aspect of his treatment. Monday we met with his oncologist and had chemotherapy. Tuesday, he had his long awaited appointment with the …
Neither snow nor rain…
...nor heat nor gloom of night stays these couriers from the swift completion of their appointed rounds. Nor sleet nor flu prevent Eli from getting radiation. Today was the last of six weeks of radiation treatment, every week day except holidays. During that time, we had all sorts of weather that made driving difficult and, …
Eli The Boss 