Years ago, when Eli was four years old, I had a sewing client who needed a dress altered for her niece. Her niece had recently died from brain cancer and the white dress they wished to bury her in was too big. I remember feeling so sad for the family who had to bury their …
A conversation with Eli's doctor over the weekend verified that they had come to the same conclusion we had: Eli's cancer is back and metastasized. The MRI was sufficiently definitive. We are now doing the PET/CT, which will tell us to what extent it has metastasized. We know it's in his arm, thigh, and foot, …
The look of someone who really didn't want their picture taken. Today is MRI day. MRI day always reminds me how amazing Eli is. It is common to think of any kid with cancer as a fighter and to be in awe at what s/he has to go through so early in life. These kids …
Leaving the clinic The basic conclusion at this point is we don't know what it is. There are benign possibilities, so we are hoping for one of those. But we have a plan to figure it out. The Plan: First, move up the scans that were supposed to be the beginning of June. PET/CT is …
I have grown to dislike with a passion bumps and lumps that don't belong on/in the body. It is getting really old. Whether it's the swollen lymph node that started Eli's journey, or his brother Noah's dermoid cyst, I have had my fill. Now there is a new mass in Eli's right bicep. It was …
In January, we didn't realize that Eli's decision to change his wish would turn out to be serendipitously foresightful. He wanted experience the gravity of the moon by taking a parabolic flight (aka: vomit comit). He decided he wanted an inventor's shed/ maker's space instead. Recently, while waiting for the new wish, we had the …
Eli's port removal surgery went spectacles well. The actual surgery was only 11 minutes. They called me from the post op recovery area, and said that he was waking up but they weren't sure how lucid he waa because he kept repeating himself. I talked to him and he kept saying how determined he was, …
I, Eli, am writing this. I am completely amazed at the unbelievable surprise. My mom made me a parade. It was incredible and that is why I am doing a post. I would like to thank all of you. The only way I know of to describe my gratitude is I don't know how to describe …
I was unsuccessful at convincing everyone involved to remove Eli's port before the 6 week-post-RSV mark. So, here we are 6 weeks post-RSV, waiting to be taken back for port removal surgery. Eli doesn't know it yet, but we will be celebrating with a little parade around the neighborhood near our home afterwards. Some friends …
The kids like to try and catch Leprechauns each year on St. Patrick's Day. This year, they set out the traps they worked on earlier today. This is what they came up with: Gold coins to lure the leprechaun into a box too deep to escape A gold coin that can't be removed (maybe leprechauns …
Continue reading Leprechaun traps, Port removal, and COVID 19
Eli The Boss 