Golden Birthday Week

Unfortunately, I'm writing this post while in the emergency department with Eli while he struggles to breathe. On Tuesday, we began celebrating his (then) upcoming 13th birthday by taking a group of his friends and siblings to a fun center. My friend Amy did they scheduling and planning, including designing and printing the Dungeons & …

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NED?!

How do you find "measurable disease" when there isn't any? I had postponed writing this post, not trusting my interpretation of Eli's latest scans. There's pretty much always something on his scans that raise questions about whether something indicates the cancer is being active or not. The long and short of it is: There is …

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