I've had trouble finishing posts for your blog. Distraction has been my therapy of choice, but it's time to use writing now. It's been almost 9 months since you died and it's gone by in a blink and dragged on like years, depending on the day. August 2021 A year ago, you spoke in our …
Elaine here. I'm sorry for the abrupt ending to the last post. I wanted to post it before it ended up languishing in the drafts folder forever and hoped that putting it out there would help us make time to finish it. But, alas, we've been very busy. I wasn't sure what would become of …
This quote has been running through my mind since Eli had a bad pain episode a week ago starting about 3 am. He had texted me asking for water for his 3 am meds. I had been woken up by our 4 year old climbing into bed with Adam and me about 2:30 am, so …
Continue reading First things first, to the death. No. To the pain.
A week after deciding to go to Disneyland, we were there. We drove out to my sister's house and spent a day trying to rest up. Some of us were more successful than others. The Big Day Bright and early, we showed up at the front gates after convincing Disneyland's security that the emesis bag …
I shouldn't be surprised by the complexity of getting some prescriptions filled, but even so, it shouldn't be as difficult as it is. When we were trying to get Eli discharged from the hospital last Friday, July 30th, the only thing holding us up was getting a prescription filled. We had been transitioning from a …
Over the last couple weeks, Eli has done two chemotherapy infusions and five high dose radiation treatments. Now he's off pain killers and visible tumors are shrinking. His leg is still swollen more than "normal" (his new normal involves chronic leg and foot edema due to damage from past radiation treatments). This neck tumor was …
Eli The Boss 