For the longest time, when asked how he was doing, Eli's response was "Same as always". In his mind, this response made perfect sense since he felt generally well and that was the same as he always felt. It bugged him to always be asked the same question by every medical person who rotated in …
On August 8th, I took a leap and bought tickets for the family to go to FanX (a comic con in Salt Lake City). The kids, my sister, my niece, and I had been talking about going to FanX together. With Eli's deteriorating health and prognosis of looming death in the coming weeks, I was …
Continue reading Living in the Moment, Planning for the Future
A week after deciding to go to Disneyland, we were there. We drove out to my sister's house and spent a day trying to rest up. Some of us were more successful than others. The Big Day Bright and early, we showed up at the front gates after convincing Disneyland's security that the emesis bag …
View as we drove away from radiation treatment As Eli and I were driving home from the couple of appointments he had today, we were greeted by pouring rain, pounding hail, thundering lightning, glowing sunshine, and a stunning rainbow. As I pondered the visits with doctors and staff, I realized the weather was a perfect …
Sir Eli the Boss Last Thursday, August 26th, our friend Erin texted me to see if we were going to the Utah Renaissance Faire, which was starting the next day. We've been attending for a number of years, but with Eli's declining health, I had decided not to go this year and I hadn't even …
Since my last post, I have come to think of each day as a good day or bad day for Eli. Saturday and Sunday were "Bad" days, while Monday was a "Good" day. Today? A little bit of both. What is a bad day? This is a day where Eli is too tired to engage …
Since the very beginning of this journey, the thing that has made it bearable and even beautiful has been the support from our community, near and far. Cancer is a terrible disease, but it has brought about the best in everyone around us. Past grievances just faded away and we have been surrounded by love. …
I shouldn't be surprised by the complexity of getting some prescriptions filled, but even so, it shouldn't be as difficult as it is. When we were trying to get Eli discharged from the hospital last Friday, July 30th, the only thing holding us up was getting a prescription filled. We had been transitioning from a …
I have thought about this question off and on for a long time. There are a couple definitions I found that apply here: 1. the capacity of an object or substance to withstand great force or pressure 2. the emotional or mental qualities necessary in dealing with situations or events that are distressing or difficult …
Here are pictures from our last two weeks in Houston, followed by an impromptu visit with friends in Louisiana. We appreciate everyone who made our time in Houston and Louisiana special. I don't have time to write everything I wanted to about the trip, so I am posting this as is.
Eli The Boss 