That is Eli's typical response when asked how he's doing. What does it mean? It usually means that he's doing fine and is in a good mood. Today, we are starting a different treatment. We are back to trying chemo, a different regimen, but chemo just the same. Same as always. We're easing back into …
I've seen dark before, but not like thisThis is cold, this is empty, this is numbThe life I knew is over, the lights are outHello, darkness, I'm ready to succumbI follow you around, I always haveBut you've gone to a place I cannot findThis grief has a gravity, it pulls me downBut a tiny voice …
It has taken me a week to find time to finish this series of posts, so I will post date it. Day #7 was travel day. On day #6, after we returned to the hotel in Fort Lauderdale, we discovered that our room keys had ceased to work. While waiting for engineering to solve the …
Continue reading Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #7
9:13 am- Today's itinerary is: 1-Pick up breakfast at Wendy's, 2-Pick up swim floaties and water at Walmart, 3-Drive to the Everglades for an airboat tour, 4-Figure out the rest later. Eli has been Mayreen's favorite nephew since he was 4 years old Not every day you pass an alligator on the road. The Everglades, …
Continue reading Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #4
Cycle 1 After three weeks of Eli's new medication, he will get to take a break from it for a week. This medication is given in 28 day cycles: 21 days on, 7 days off, and will repeat until it stops working. Within a week of starting Stivarga/Regorafenib, Eli could tell his thigh tumor was …
