Cycle 1 After three weeks of Eli's new medication, he will get to take a break from it for a week. This medication is given in 28 day cycles: 21 days on, 7 days off, and will repeat until it stops working. Within a week of starting Stivarga/Regorafenib, Eli could tell his thigh tumor was …
We usually think of being photogenic as looking good on camera. What do you call someone who looks good on scans? Eli is having his MRI now and negotiated with the nurse when she would put in his IV for the contrast. During said negotiations, she mentioned how good he is at getting his MRIs. …
Trying to decide on a relapse treatment plan was much more difficult than I had anticipated. When I read the MRI results back in May, I was devastated, but determined to push through whatever miserable chemo combo was on the menu for relapse. Instead, we were told there wasn't a plan because nothing would cure …
Eli's bucket list Progress has been made on the list of things Eli wants to do as well as on his workshop, courtesy of Make-A-Wish. While they are providing the structure and many of the accoutrements Eli wants on the inside, they do have a budget, so not everything he wants will be included. Ground …
While waiting for test results to guide our treatment decision making, we have been making progress on Eli's list of things he wants to do. Basically it's his bucket list, which, as it so happens, I had the foresight to start work on many months ago, since, it appears, foresight as to where this journey …
