Leaving the hospital with a normal temperature
Tag: COVID19
Roller Coasters
While on our Florida trip, we went to Universal Studios where Eli rode his first roller coaster. He was reluctant to ride it because he said he was afraid of heights. He rode it anyway and had an exhilarating experience. Hagrid's involved a lot of steep ups and downs, sudden curves, stops and drops, and, …
Fever
Last post Eli had been exposed to Covid-19 at the hospital while there for surgery. A couple days later we found out that his sister tested positive for Covid-19, so he was exposed at home. If she had more of a social life, it wouldn't have been a surprise, but she only goes to work, …
Same as Always
That is Eli's typical response when asked how he's doing. What does it mean? It usually means that he's doing fine and is in a good mood. Today, we are starting a different treatment. We are back to trying chemo, a different regimen, but chemo just the same. Same as always. We're easing back into …
Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #6
And...the snorkeling excursion in the Keys was cancelled. The weather actually ended up being very nice, but I guess the wind was incompatible with the boat ride. However, they said we could still rent the gear and snorkel in the lagoon. So that's what we did. Eli was in a bad mood, so I don't …
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Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #5
Sunday was our day to relax. Our plan was to do a dinner/ riverboat cruise in the evening, but the rest of the day was open to recharge from the past few days of activities. Eli decided extra time in the pool was what he needed. Ella and Eli as seen from our room's balcony …
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Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #4
9:13 am- Today's itinerary is: 1-Pick up breakfast at Wendy's, 2-Pick up swim floaties and water at Walmart, 3-Drive to the Everglades for an airboat tour, 4-Figure out the rest later. Eli has been Mayreen's favorite nephew since he was 4 years old Not every day you pass an alligator on the road. The Everglades, …
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Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #3
On the agenda for today was snorkeling near Fort Lauderdale, but it was too windy and it was cancelled. Mayreen and I did some searching for a plan B, and Mayreen (a.k.a. "Ant May May", yes I know it's usually spelled "Aunt", but Eli doesn't know that and Mayreen really loves to be called Ant) …
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Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #2
Florida is wet. Very, very wet. It reminds me of Panama, sudden downpours mixed with sunshine. Kinda like my life the last couple years, actually. But I digress. We started the day checking out of the hotel, since the plan, after spending the day at Universal Studios, was to drive back south to our next …
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I Don’t Do Drugs
Cycle 1 After three weeks of Eli's new medication, he will get to take a break from it for a week. This medication is given in 28 day cycles: 21 days on, 7 days off, and will repeat until it stops working. Within a week of starting Stivarga/Regorafenib, Eli could tell his thigh tumor was …
Eli The Boss 