Usually Eli sees the doctor the most, any given week, although it's usually only once or twice. Last week, he saw the radiologist, then had an MRI on a separate visit, so score 2 for Eli. I followed up with the doctor for the latest tendonitis incident, then went to physical therapy twice, so score …
Today has been a bad day for me from an administrative perspective. One of the things that I learned about dealing with a long term, intensive health care problem is that one of my main jobs is health care administration: making sure doctors put in the proper orders to the proper places, knowing the specs …
Continue reading Unfilled prescriptions and Unclaimed Furniture
Eli has been requesting that I post photos of his stitches, so I took a few at our radiation mapping appointment earlier this week. We met with the radiation team to get Eli prepped for radiation, which begins in a little over a week. First, they put a gel like thing on the bottom of …
Eli asked me yesterday what he can do now that he's in a wheelchair. Well, today he can watch a lunar eclipse.
The original plan was to stay the night at the hospital to ensure pain was manageable before going home. However, Eli had other plans. With a nerve block in place, his need for meds was minimal and he just wanted to go home. We all wanted to go home. So, that's what we did. After …
Yes, this is the second post of the day and we are still at the hospital, waiting for the last scan (this was written about 7pm). A clear scan of Eli's foot will make today's happiness complete (of course we won't have the report today, so I'll assume that no tumor is left in his …
Adam and I aren't pet people. I always feel the need to wash my hands after touching an animal or being touched by one and I don't like pet hair on my clothes or furniture or food. The older I get, the more I dislike being around animals. However, my kids don't feel the same. …
Today we got to meet the radiation oncologist. I just don't know what else to say. It's a necessary part of Eli's treatment which we'll start later in January and it will continue for about 5-6 weeks. Every weekday, except holidays. That will be thrilling-oh joy of commuting to Salt Lake City every day.The upsides: …
Friday, November 2, 2019 We had been warned earlier that week, while still admitted in the hospital, that they had some training in store for us. They ended up letting us be discharged with only some basic training, mostly centered around the administration of the blood thinner they put Eli on to prevent blood clots …
Thursday, November 1st It felt good to sleep in my own bed again after having spent the week in barely adequate accommodations next to Eli's hospital bed. We were home, but didn't know for how long, since treatment would begin after the diagnosis of the specific type of cancer was made. The schedule for the …
Eli The Boss 