Somehow we ended up with an extra early appointment today, so we had to leave a little after 6am. For whatever reason, I tend to forget to put numbing cream on Eli's port before we leave for his chemo treatment, but usually he reminds me. Today, though, I remembered. After I was ready to go, …
Category: cancer sucks
Another post
We're doing another overnight treatment and the surgeon came by to check on Eli's foot. It is doing well enough that Eli can start, slowly, putting weight on his foot without boot. Yay! Eli has also been requesting that I advertise his stuffed animal repair business. With his increased mobility, he is offering pickup of …
Left foot, left foot, left foot right
I've been feeling worn out the last couple weeks, so I'm behind on some of the goings on in Eli's treatment. The week of March 4th, Eli got to see doctors from each aspect of his treatment. Monday we met with his oncologist and had chemotherapy. Tuesday, he had his long awaited appointment with the …
Neither snow nor rain…
...nor heat nor gloom of night stays these couriers from the swift completion of their appointed rounds. Nor sleet nor flu prevent Eli from getting radiation. Today was the last of six weeks of radiation treatment, every week day except holidays. During that time, we had all sorts of weather that made driving difficult and, …
Irinotecan Week
The medical staff call it "I ran to the can", but Eli calls Irinotecan "bee sting" meds (see previous post). He was supposed to take his first dose on Monday, but Eli negotiated to start on Tuesday. I had to beg and bribe him to get him to agree to take the meds orally instead …
How many pharmacists does it take to change a light bulb?
Just one, but it takes many trips to the pharmacy, visits to the doctor, and phone calls to fill a prescription. So one of my super powers is having an eye for details. With every super power comes its kryptonite, but this post is about the successful implementation of my super power. Every good super …
Continue reading How many pharmacists does it take to change a light bulb?
Fevers and other annoyances (Warning: self pity post)
So the kids have been getting sick. If it were just colds, like they've had off and on the last few months, then it wouldn't be a big deal. Sadly, it's been more than that. It all started last Thursday when older sister Ella started feeling sick. Her throat hurt, she had a fever, and …
Continue reading Fevers and other annoyances (Warning: self pity post)
It Tastes Like a Bee Sting
For a while now, I've been thinking of writing a post that describes what cancer is like for Eli and our family. I had preconceived notions about cancer and treatment before we got to experience it up close and personal, so it isn't surprising when others we talk to have questions. Elaine's preconceived notion #1: …
Death Rays & Virtual Reality
Earlier this week we started chemo again with an overnight stay. It also coincided with the first of 28 radiation treatments. Yay, death to any tumor cells that may still be lurking about Eli's leg. The first day, PCH sent us over to Huntsman in a van equipped with a wheelchair lift so Eli could …
Stitch removal & Simulation
Earlier this week Eli's stitches were removed from his foot. Eli's chemo was scheduled to start up again today, but the surgeon wanted a little more time for his foot to heal before resuming chemo, so the chemo was rescheduled. I got to use my awesome administrative superpowers to rearrange all of the care for …
Eli The Boss 