Eli's port removal surgery went spectacles well. The actual surgery was only 11 minutes. They called me from the post op recovery area, and said that he was waking up but they weren't sure how lucid he waa because he kept repeating himself. I talked to him and he kept saying how determined he was, …
I, Eli, am writing this. I am completely amazed at the unbelievable surprise. My mom made me a parade. It was incredible and that is why I am doing a post. I would like to thank all of you. The only way I know of to describe my gratitude is I don't know how to describe …
I was unsuccessful at convincing everyone involved to remove Eli's port before the 6 week-post-RSV mark. So, here we are 6 weeks post-RSV, waiting to be taken back for port removal surgery. Eli doesn't know it yet, but we will be celebrating with a little parade around the neighborhood near our home afterwards. Some friends …
Eli came down with a fever on Sunday, so we got to make a trip to the emergency department at the hospital since he still has a port. They had people inside the entrance to greet us with questions about symptoms and pump hand sanitizer on our hands and give out masks for those who …
With the scans having gone well and the port removal surgery scheduled, I thought we'd breeze through this last bit without problems. Sadly, this has turned out not to be the case. Three weeks ago, Tabitha, age 5, came down with a virus of some sort that gave her croup. I had her with me …
The kids like to try and catch Leprechauns each year on St. Patrick's Day. This year, they set out the traps they worked on earlier today. This is what they came up with: Gold coins to lure the leprechaun into a box too deep to escape A gold coin that can't be removed (maybe leprechauns …
Continue reading Leprechaun traps, Port removal, and COVID 19
Wishing he could be playing outside Eli's complaint for the day is that he wants to be outside playing in the spring-like weather instead of cooped up in an MRI machine for the next three hours. We arrived at the hospital earlier than planned, but the staff was ready to get started. I had already …
Waiting to be called back for the PET/CT Looks like it will be a longer than usual PET/CT day. We came an hour early for port access and labs (I would have done the access at home, but he needed labs, so I opted to do it under supervision at the clinic instead). Quick fist …
Today is Eli's last in clinic chemo. We continue with daily pills for the next two weeks, then do scans, then we're done. Yay! I will get to use my port accessing superpowers to access his port at home before his MRI. March 9th is the official end of treatment, assuming scans go well.
Eli made counts today and is now receiving the first infusion in his last cycle of chemotherapy. Yay! March 9th will be the official end of treatment appointment. By then, he'll have had the next set of scans. At that point, assuming scans are clear, he will continue to have scans every few months, diminishing …
Eli The Boss 