I have grown to dislike with a passion bumps and lumps that don't belong on/in the body. It is getting really old. Whether it's the swollen lymph node that started Eli's journey, or his brother Noah's dermoid cyst, I have had my fill. Now there is a new mass in Eli's right bicep. It was …
Eli's port removal surgery went spectacles well. The actual surgery was only 11 minutes. They called me from the post op recovery area, and said that he was waking up but they weren't sure how lucid he waa because he kept repeating himself. I talked to him and he kept saying how determined he was, …
I was unsuccessful at convincing everyone involved to remove Eli's port before the 6 week-post-RSV mark. So, here we are 6 weeks post-RSV, waiting to be taken back for port removal surgery. Eli doesn't know it yet, but we will be celebrating with a little parade around the neighborhood near our home afterwards. Some friends …
Eli came down with a fever on Sunday, so we got to make a trip to the emergency department at the hospital since he still has a port. They had people inside the entrance to greet us with questions about symptoms and pump hand sanitizer on our hands and give out masks for those who …
With the scans having gone well and the port removal surgery scheduled, I thought we'd breeze through this last bit without problems. Sadly, this has turned out not to be the case. Three weeks ago, Tabitha, age 5, came down with a virus of some sort that gave her croup. I had her with me …
The kids like to try and catch Leprechauns each year on St. Patrick's Day. This year, they set out the traps they worked on earlier today. This is what they came up with: Gold coins to lure the leprechaun into a box too deep to escape A gold coin that can't be removed (maybe leprechauns …
Continue reading Leprechaun traps, Port removal, and COVID 19
Today is Eli's last in clinic chemo. We continue with daily pills for the next two weeks, then do scans, then we're done. Yay! I will get to use my port accessing superpowers to access his port at home before his MRI. March 9th is the official end of treatment, assuming scans go well.
Every time we go to the clinic, they draw Eli's blood and send it down to the lab. The lab technicians test the levels of the different components of his blood and send back a report. The doctor looks at the report of the blood counts to monitor his health and determine whether his ANC …
This is the view from the imaging waiting room. Eli will be excited when he sees how much snow has come down while he's been watching movies in the MRI. Yes, it is that time again--periodic scans to make sure the cancer hasn't returned. This time, the correct amount of time was scheduled, so no …
Eli's brother Noah, of the infamous Thyroglossal Duct Cyst, is now in surgery to have it removed. That cute Adam's apple style lump will be no more. Here I am with Noah in pre-op. It was a long wait. His surgery was scheduled for late afternoon and got started late, as I expected because what …
Eli The Boss 