Dear Eli, We spent the last couple days at the Renaissance Faire. It was bittersweet as I visited the leatherworker who gave you the D&D leather game roll and, later, when I paid my respects to Queen Elizabeth, who had us as special guests at her feast last year. 2021 2022 Every time I saw …
I've had trouble finishing posts for your blog. Distraction has been my therapy of choice, but it's time to use writing now. It's been almost 9 months since you died and it's gone by in a blink and dragged on like years, depending on the day. August 2021 A year ago, you spoke in our …
Dear Eli, Ella composed this song for you in February, performed it for your birthday party in May, and performed it again at a camp she and Peter went to at BYY last week. You can't tell from the video, but there were 800 people in the audience. Miss you Eli! https://youtu.be/xZRjFTxlmzc
As Easter was drawing near this year, I realized that it would be on the 17th of the month, exactly 5 months after Eli departed this world for the next. I was checking my Facebook messages this morning and had the thought that I needed to check the messages that Facebook doesn't notify me of …
My obligatory selfie--I take one every time I visit Eli's grave. I walked with my friend to the cemetery today. We brought a hook to hang one of the Valentines that someone had left on Eli's grave. Adam and I had discovered it several days ago when we had driven by. On Valentine's Day, my …
Adam again. The night Eli graduated, we began sending notifications and making phone calls. We started with the medical people, so they could come and complete the formalities and paperwork. Then to our close friends who had already been helping us plan for this event, or had been directly helping us cope in various ways. …
Celebrating Christmas We got to celebrate Christmas early this year. Our dear neighbors decorated their homes with Christmas lights and decor early, just in time for Eli to do a little driving tour. This was likely his last outing. Labor Having given birth to nine children, I am well acquainted with the work it takes …
Here are pictures from our last two weeks in Houston, followed by an impromptu visit with friends in Louisiana. We appreciate everyone who made our time in Houston and Louisiana special. I don't have time to write everything I wanted to about the trip, so I am posting this as is.
Over the last couple weeks, Eli has done two chemotherapy infusions and five high dose radiation treatments. Now he's off pain killers and visible tumors are shrinking. His leg is still swollen more than "normal" (his new normal involves chronic leg and foot edema due to damage from past radiation treatments). This neck tumor was …
I've been trying to figure out the best answer to this common, reflexive question, because the answer for the last week or so has been "Not so good" and "please don't ask". Last week we met with the team to discuss the PET/CT and next steps, like how do we make it to the trial …
Eli The Boss 