Grief is a constant companion. It is always there. I can be distracted from it. I can ignore it. I can even hide from it, but I can't get rid of it, nor do I want to. Grief reminds me that my son exists. When Eli's biopsy four years ago today came back positive for …
View as we drove away from radiation treatment As Eli and I were driving home from the couple of appointments he had today, we were greeted by pouring rain, pounding hail, thundering lightning, glowing sunshine, and a stunning rainbow. As I pondered the visits with doctors and staff, I realized the weather was a perfect …
I shouldn't be surprised by the complexity of getting some prescriptions filled, but even so, it shouldn't be as difficult as it is. When we were trying to get Eli discharged from the hospital last Friday, July 30th, the only thing holding us up was getting a prescription filled. We had been transitioning from a …
I have thought about this question off and on for a long time. There are a couple definitions I found that apply here: 1. the capacity of an object or substance to withstand great force or pressure 2. the emotional or mental qualities necessary in dealing with situations or events that are distressing or difficult …
Day -3: Tuesday June 22 (continued) Our new friend Elisa knew that Eli left his dice for Magic the Gathering back home. We couldn't find any at the grocery store to which she had given us a ride on Monday, so she looked on Amazon. She found some, that ended up being free because of …
Day -5 Sunday, June 20 Waiting to board the plane Sunday we flew to Houston for the Car T cell therapy clinical trial. The chemo and radiation we did in May quieted the cancer sufficiently and we decided to move forward with the trial. Waiting for takeoff During the past month, I filled out and …
Over the last couple weeks, Eli has done two chemotherapy infusions and five high dose radiation treatments. Now he's off pain killers and visible tumors are shrinking. His leg is still swollen more than "normal" (his new normal involves chronic leg and foot edema due to damage from past radiation treatments). This neck tumor was …
When life hands you bacon, make bacon bandaids. "Life before death" Eli was discharged from the hospital Friday with normal breathing. The breathing treatment in the Emergency department had gotten things back to "normal", whatever that really is for him. "Strength before weakness" While Eli wanted surgery, that was never a good option. He has …
Eli The Boss 