The medical staff call it "I ran to the can", but Eli calls Irinotecan "bee sting" meds (see previous post). He was supposed to take his first dose on Monday, but Eli negotiated to start on Tuesday. I had to beg and bribe him to get him to agree to take the meds orally instead …
How many pharmacists does it take to change a light bulb?
Just one, but it takes many trips to the pharmacy, visits to the doctor, and phone calls to fill a prescription. So one of my super powers is having an eye for details. With every super power comes its kryptonite, but this post is about the successful implementation of my super power. Every good super …
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Fevers and other annoyances (Warning: self pity post)
So the kids have been getting sick. If it were just colds, like they've had off and on the last few months, then it wouldn't be a big deal. Sadly, it's been more than that. It all started last Thursday when older sister Ella started feeling sick. Her throat hurt, she had a fever, and …
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It Tastes Like a Bee Sting
For a while now, I've been thinking of writing a post that describes what cancer is like for Eli and our family. I had preconceived notions about cancer and treatment before we got to experience it up close and personal, so it isn't surprising when others we talk to have questions. Elaine's preconceived notion #1: …
Death Rays & Virtual Reality
Earlier this week we started chemo again with an overnight stay. It also coincided with the first of 28 radiation treatments. Yay, death to any tumor cells that may still be lurking about Eli's leg. The first day, PCH sent us over to Huntsman in a van equipped with a wheelchair lift so Eli could …
Stitch removal & Simulation
Earlier this week Eli's stitches were removed from his foot. Eli's chemo was scheduled to start up again today, but the surgeon wanted a little more time for his foot to heal before resuming chemo, so the chemo was rescheduled. I got to use my awesome administrative superpowers to rearrange all of the care for …
Who saw the doctor the most last week?
Usually Eli sees the doctor the most, any given week, although it's usually only once or twice. Last week, he saw the radiologist, then had an MRI on a separate visit, so score 2 for Eli. I followed up with the doctor for the latest tendonitis incident, then went to physical therapy twice, so score …
Unfilled prescriptions and Unclaimed Furniture
Today has been a bad day for me from an administrative perspective. One of the things that I learned about dealing with a long term, intensive health care problem is that one of my main jobs is health care administration: making sure doctors put in the proper orders to the proper places, knowing the specs …
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Prepping for Radiation
Eli has been requesting that I post photos of his stitches, so I took a few at our radiation mapping appointment earlier this week. We met with the radiation team to get Eli prepped for radiation, which begins in a little over a week. First, they put a gel like thing on the bottom of …
Super Blood Wolf Moon – luner eclipse
Eli asked me yesterday what he can do now that he's in a wheelchair. Well, today he can watch a lunar eclipse.
Eli The Boss 