The kids like to try and catch Leprechauns each year on St. Patrick's Day. This year, they set out the traps they worked on earlier today. This is what they came up with: Gold coins to lure the leprechaun into a box too deep to escape A gold coin that can't be removed (maybe leprechauns …
Continue reading Leprechaun traps, Port removal, and COVID 19
Wishing he could be playing outside Eli's complaint for the day is that he wants to be outside playing in the spring-like weather instead of cooped up in an MRI machine for the next three hours. We arrived at the hospital earlier than planned, but the staff was ready to get started. I had already …
Waiting to be called back for the PET/CT Looks like it will be a longer than usual PET/CT day. We came an hour early for port access and labs (I would have done the access at home, but he needed labs, so I opted to do it under supervision at the clinic instead). Quick fist …
Today is Eli's last in clinic chemo. We continue with daily pills for the next two weeks, then do scans, then we're done. Yay! I will get to use my port accessing superpowers to access his port at home before his MRI. March 9th is the official end of treatment, assuming scans go well.
Eli made counts today and is now receiving the first infusion in his last cycle of chemotherapy. Yay! March 9th will be the official end of treatment appointment. By then, he'll have had the next set of scans. At that point, assuming scans are clear, he will continue to have scans every few months, diminishing …
This is the view from the imaging waiting room. Eli will be excited when he sees how much snow has come down while he's been watching movies in the MRI. Yes, it is that time again--periodic scans to make sure the cancer hasn't returned. This time, the correct amount of time was scheduled, so no …
Eli's brother Noah, of the infamous Thyroglossal Duct Cyst, is now in surgery to have it removed. That cute Adam's apple style lump will be no more. Here I am with Noah in pre-op. It was a long wait. His surgery was scheduled for late afternoon and got started late, as I expected because what …
If you managed to make it to the end of my last post, you may be wondering how things ended up with Noah. Let's start with Eli's milestone. Celebrating a Milestone A common event in many children's hospitals when a child has completed their cancer treatment is a bell ringing celebration. Eli officially finished his …
Continue reading Sometimes I like being right and Celebrating a Milestone
This time, Eli didn't eat anything and I remembered to give him a Zofran to, hopefully, prevent his throwing up when they make him drink the stuff before the scan. We haven't heard that the machine is down, so that's good. We are waiting for a port access, then we'll go downstairs to imaging.
I know you have been on pins and needles waiting for me to let you know what happened after the MRI broke. After the staff person told me that the MRI machine wouldn't come back up, the first thing I told her was that maintenance, routine or otherwise, should always be done at the end …
Eli The Boss 