I have thought about this question off and on for a long time. There are a couple definitions I found that apply here: 1. the capacity of an object or substance to withstand great force or pressure 2. the emotional or mental qualities necessary in dealing with situations or events that are distressing or difficult …
Here are pictures from our last two weeks in Houston, followed by an impromptu visit with friends in Louisiana. We appreciate everyone who made our time in Houston and Louisiana special. I don't have time to write everything I wanted to about the trip, so I am posting this as is.
Wednesday June 30 Yes, the market is part of the gas station, but it was full of fun and interesting food options--not a typical convenience store. Eli was discharged from the hospital in the morning. He wanted to go on a walk, so we walked to an international market down the street from our apartment. …
I was very anxious about Eli's PET/CT and was sure the disease had spread beyond the spot by his eye. He had the PET/CT on Tuesday, but results weren't scheduled to be read until Wednesday. I was in a dark place waiting for the results and I was impatient, refreshing the health app to see …
It has taken me a week to find time to finish this series of posts, so I will post date it. Day #7 was travel day. On day #6, after we returned to the hotel in Fort Lauderdale, we discovered that our room keys had ceased to work. While waiting for engineering to solve the …
Continue reading Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #7
Florida is wet. Very, very wet. It reminds me of Panama, sudden downpours mixed with sunshine. Kinda like my life the last couple years, actually. But I digress. We started the day checking out of the hotel, since the plan, after spending the day at Universal Studios, was to drive back south to our next …
Continue reading Eli’s Fun Fabulous Fantastic Florida Excursion and Snorkeling Day #2
Eli is pretty amazing. His three weeks of daily radiation began on Monday. He's really had a great attitude about it. He had a few hard days in August, but once he arranged for regular VR play time while at Primary Children's for clinic visits, he's been much happier. Before one of his trips up …
While waiting for test results to guide our treatment decision making, we have been making progress on Eli's list of things he wants to do. Basically it's his bucket list, which, as it so happens, I had the foresight to start work on many months ago, since, it appears, foresight as to where this journey …
Eli The Boss 