One of the things I worry about is remembering how Eli sounds or looks or all the moments I spent with him throughout his life. In fact, that is one of the reasons I keep this blog. Holidays can be difficult for various reasons. I wasn't sure how this one would feel. It's had its …
Tag: Service
Miracles, Coincidences, and Other Disasters
Dear Eli, You'll be happy to know the house didn't burn down today. Ella was hanging out in your workshop, which, if you recall, gets its electricity via an outdoor rated extension cord running to an outlet on the outside of the house. She was cold, so she turned on a portable heater. She was …
Continue reading Miracles, Coincidences, and Other Disasters
Deathversary
Dear Eli, I totally don't know what to call it. Death day? Death Anniversary? We were calling it your graduation, since you graduated from this life, but graduation anniversary doesn't seem right, either. So, when it comes up, we just call it the 17th. [One cousin who read this post uses "angelversary", which is a …
Celebrating
Dear Eli, Happy birthday! We've decided to throw a birthday party in your honor on your birthday this Friday, May 13th. We know you wanted to throw a party for all the people who have supported you and our family throughout your cancer fight these last few years, in appreciation for everything they have done …
Love Never Dies
My obligatory selfie--I take one every time I visit Eli's grave. I walked with my friend to the cemetery today. We brought a hook to hang one of the Valentines that someone had left on Eli's grave. Adam and I had discovered it several days ago when we had driven by. On Valentine's Day, my …
Moving Forward with Hope
Two weeks ago we passed the two month mark since Eli's passing. It feels like yesterday and forever ago all at once. These torches are solar powered and flicker in the dark. Christmas Christmas was magical. Thanks to very generous organizations and anonymous elves, we were able to customize their gifts to build their talents …
Silent Night
When Eli was little, his first sentence was spoken to me as I changed his diaper. As I leaned over the changing table to secure the tabs on his diaper, my hair fell forward and tickled his face. He removed his fingers from his mouth, which he had been sucking, to reach out to touch …
One Month Later
Elaine here. I'm sorry for the abrupt ending to the last post. I wanted to post it before it ended up languishing in the drafts folder forever and hoped that putting it out there would help us make time to finish it. But, alas, we've been very busy. I wasn't sure what would become of …
Basking in Love, Part 1
Adam again. The night Eli graduated, we began sending notifications and making phone calls. We started with the medical people, so they could come and complete the formalities and paperwork. Then to our close friends who had already been helping us plan for this event, or had been directly helping us cope in various ways. …
Graduation Day
Adam posting this evening. Elijah Thomas Augustine passed on this evening at about 9:16 PM. He was having trouble breathing and said that he wanted to die. His mother said, "Well you have been fighting for so long. Three years." Eli said, "We are champions." He then asked his mother if it was OK if …