Leaving the hospital with a normal temperature
Tag: prescription medications
Roller Coasters
While on our Florida trip, we went to Universal Studios where Eli rode his first roller coaster. He was reluctant to ride it because he said he was afraid of heights. He rode it anyway and had an exhilarating experience. Hagrid's involved a lot of steep ups and downs, sudden curves, stops and drops, and, …
Treat–Scan–Repeat
It's that time again. Time to see what's going on with the cancer in Eli's body. Since I can feel Eli's thigh tumor, and a couple of the tumors we radiated in September, without scans I could tell that radiation did a good job of shrinking the foot and arm tumors. The thigh tumor, which …
A Day in the Life
Me waiting while Adam is taken to imaging When I was writing the last post, I was sitting in the emergency department at our local hospital with Adam, trying not to use all my phone battery. It was Friday and the day had started off pretty typically. At 8am my alarm went off reminding me …
Time for another post
Eli is pretty amazing. His three weeks of daily radiation began on Monday. He's really had a great attitude about it. He had a few hard days in August, but once he arranged for regular VR play time while at Primary Children's for clinic visits, he's been much happier. Before one of his trips up …
I Don’t Do Drugs
Cycle 1 After three weeks of Eli's new medication, he will get to take a break from it for a week. This medication is given in 28 day cycles: 21 days on, 7 days off, and will repeat until it stops working. Within a week of starting Stivarga/Regorafenib, Eli could tell his thigh tumor was …
Photogenic
We usually think of being photogenic as looking good on camera. What do you call someone who looks good on scans? Eli is having his MRI now and negotiated with the nurse when she would put in his IV for the contrast. During said negotiations, she mentioned how good he is at getting his MRIs. …
Only Bad Options
Trying to decide on a relapse treatment plan was much more difficult than I had anticipated. When I read the MRI results back in May, I was devastated, but determined to push through whatever miserable chemo combo was on the menu for relapse. Instead, we were told there wasn't a plan because nothing would cure …
PET/CT Day
This time, Eli didn't eat anything and I remembered to give him a Zofran to, hopefully, prevent his throwing up when they make him drink the stuff before the scan. We haven't heard that the machine is down, so that's good. We are waiting for a port access, then we'll go downstairs to imaging.
Crash and Burn (part 2) or Rising from the Ashes
Eli opted for Irinotecan in cranberry juice. After consulting with the pharmacist, I prepared the supplies, but forgot put on gloves until I was in the middle of adding half of the syringe of medication into 30 ml (2 tablespoons) of the juice, but I pressed forward. While swirling the contents to try and mix …
Continue reading Crash and Burn (part 2) or Rising from the Ashes
Eli The Boss 