I've seen dark before, but not like thisThis is cold, this is empty, this is numbThe life I knew is over, the lights are outHello, darkness, I'm ready to succumbI follow you around, I always haveBut you've gone to a place I cannot findThis grief has a gravity, it pulls me downBut a tiny voice …
It's that time again. Time to see what's going on with the cancer in Eli's body. Since I can feel Eli's thigh tumor, and a couple of the tumors we radiated in September, without scans I could tell that radiation did a good job of shrinking the foot and arm tumors. The thigh tumor, which …
Eli is pretty amazing. His three weeks of daily radiation began on Monday. He's really had a great attitude about it. He had a few hard days in August, but once he arranged for regular VR play time while at Primary Children's for clinic visits, he's been much happier. Before one of his trips up …
Cycle 1 After three weeks of Eli's new medication, he will get to take a break from it for a week. This medication is given in 28 day cycles: 21 days on, 7 days off, and will repeat until it stops working. Within a week of starting Stivarga/Regorafenib, Eli could tell his thigh tumor was …
We usually think of being photogenic as looking good on camera. What do you call someone who looks good on scans? Eli is having his MRI now and negotiated with the nurse when she would put in his IV for the contrast. During said negotiations, she mentioned how good he is at getting his MRIs. …
