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Adventures of Eli vs. Rhabdo

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Category: cancer treatment

The Next Right Thing

On November 5, 2020December 28, 2020 By ElaineIn cancer sucks, cancer treatment3 Comments

I've seen dark before, but not like thisThis is cold, this is empty, this is numbThe life I knew is over, the lights are outHello, darkness, I'm ready to succumbI follow you around, I always haveBut you've gone to a place I cannot findThis grief has a gravity, it pulls me downBut a tiny voice …

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Treat–Scan–Repeat

On November 3, 2020November 5, 2020 By ElaineIn cancer sucks, cancer treatment1 Comment

It's that time again. Time to see what's going on with the cancer in Eli's body. Since I can feel Eli's thigh tumor, and a couple of the tumors we radiated in September, without scans I could tell that radiation did a good job of shrinking the foot and arm tumors. The thigh tumor, which …

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Time for another post

On September 18, 2020 By ElaineIn Bucket list, cancer sucks, cancer treatment1 Comment

Eli is pretty amazing. His three weeks of daily radiation began on Monday. He's really had a great attitude about it. He had a few hard days in August, but once he arranged for regular VR play time while at Primary Children's for clinic visits, he's been much happier. Before one of his trips up …

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I Don’t Do Drugs

On August 26, 2020August 26, 2020 By ElaineIn cancer sucks, cancer treatment, Miscellaneous medical issuesLeave a comment

Cycle 1 After three weeks of Eli's new medication, he will get to take a break from it for a week. This medication is given in 28 day cycles: 21 days on, 7 days off, and will repeat until it stops working. Within a week of starting Stivarga/Regorafenib, Eli could tell his thigh tumor was …

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Photogenic

On August 7, 2020 By ElaineIn cancer sucks, cancer treatment, Miscellaneous medical issues2 Comments

We usually think of being photogenic as looking good on camera. What do you call someone who looks good on scans? Eli is having his MRI now and negotiated with the nurse when she would put in his IV for the contrast. During said negotiations, she mentioned how good he is at getting his MRIs. …

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People have asked what they can do for Eli. If you want to donate towards his ever changing bucket list, you may donate via my Venmo account (this is my sewing business, but if you put ” For Eli” in the payment comments, I will only use this money for things Eli wants to do.

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