When things are going well, it's easy to pretend that it will stay that way indefinitely. Life starts to feel more normal. For example, Eli begged me to get him the parts to build one of his inventions. A few pulleys, paracord, and hooks later, he had converted the swingset into a device designed to …
How do you find "measurable disease" when there isn't any? I had postponed writing this post, not trusting my interpretation of Eli's latest scans. There's pretty much always something on his scans that raise questions about whether something indicates the cancer is being active or not. The long and short of it is: There is …
10:03 PM We just finished cycle 6 of the chemo protocol last week. Each cycle is 3 weeks. Unfortunately, he has a fever. Our family has been going through a virus of some sort (Covid test came back negative), but regardless, Eli caught it just when I thought we were out of the woods. He …
The head/neck MRI showed the tumor behind/ below Eli's eye is stable. This is good news. Our team discussed the findings and decided on two more cycles (6 weeks) of chemo, then we'll do more scans. Basically, as long as what we're doing is working, we'll keep doing, unless other toxicities appear. Thursday, we were …
Last week Eli had the week off of chemo and all other medical stuff, so I decided to take care of my own medical housekeeping. I didn't set out to compete with Eli for number of medical appointments in a week, but it was almost a tie. Tuesday: About 2 1/2 years ago I had …
