The look of someone who really didn't want their picture taken. Today is MRI day. MRI day always reminds me how amazing Eli is. It is common to think of any kid with cancer as a fighter and to be in awe at what s/he has to go through so early in life. These kids …
Leaving the clinic The basic conclusion at this point is we don't know what it is. There are benign possibilities, so we are hoping for one of those. But we have a plan to figure it out. The Plan: First, move up the scans that were supposed to be the beginning of June. PET/CT is …
I have grown to dislike with a passion bumps and lumps that don't belong on/in the body. It is getting really old. Whether it's the swollen lymph node that started Eli's journey, or his brother Noah's dermoid cyst, I have had my fill. Now there is a new mass in Eli's right bicep. It was …
In January, we didn't realize that Eli's decision to change his wish would turn out to be serendipitously foresightful. He wanted experience the gravity of the moon by taking a parabolic flight (aka: vomit comit). He decided he wanted an inventor's shed/ maker's space instead. Recently, while waiting for the new wish, we had the …
Eli's port removal surgery went spectacles well. The actual surgery was only 11 minutes. They called me from the post op recovery area, and said that he was waking up but they weren't sure how lucid he waa because he kept repeating himself. I talked to him and he kept saying how determined he was, …
