I wrote this post in October 2020 after September's round of radiation. I never managed to publish it, but no time like the present. This is one of Eli's wishes that I'm surprised didn't happen sooner. With a busy schedule and a failed attempt or two to schedule a battle with Nerf guns, this feat …
I shouldn't be surprised by the complexity of getting some prescriptions filled, but even so, it shouldn't be as difficult as it is. When we were trying to get Eli discharged from the hospital last Friday, July 30th, the only thing holding us up was getting a prescription filled. We had been transitioning from a …
I've been trying to figure out the best answer to this common, reflexive question, because the answer for the last week or so has been "Not so good" and "please don't ask". Last week we met with the team to discuss the PET/CT and next steps, like how do we make it to the trial …
