I've had trouble finishing posts for your blog. Distraction has been my therapy of choice, but it's time to use writing now. It's been almost 9 months since you died and it's gone by in a blink and dragged on like years, depending on the day. August 2021 A year ago, you spoke in our …
Since the very beginning of this journey, the thing that has made it bearable and even beautiful has been the support from our community, near and far. Cancer is a terrible disease, but it has brought about the best in everyone around us. Past grievances just faded away and we have been surrounded by love. …
I shouldn't be surprised by the complexity of getting some prescriptions filled, but even so, it shouldn't be as difficult as it is. When we were trying to get Eli discharged from the hospital last Friday, July 30th, the only thing holding us up was getting a prescription filled. We had been transitioning from a …
I have thought about this question off and on for a long time. There are a couple definitions I found that apply here: 1. the capacity of an object or substance to withstand great force or pressure 2. the emotional or mental qualities necessary in dealing with situations or events that are distressing or difficult …
Here are pictures from our last two weeks in Houston, followed by an impromptu visit with friends in Louisiana. We appreciate everyone who made our time in Houston and Louisiana special. I don't have time to write everything I wanted to about the trip, so I am posting this as is.
Wednesday June 30 Yes, the market is part of the gas station, but it was full of fun and interesting food options--not a typical convenience store. Eli was discharged from the hospital in the morning. He wanted to go on a walk, so we walked to an international market down the street from our apartment. …
Well eli here. At this time I'm in the hospital. Not too bad I'd say. I watched Clouds and well I'm in the hospital so ironic I think. Clouds is a move that is about a teenager with cancer. [Mom here. Clouds is a movie on Disney +] And that nose thing isn't that bad …
Day -3: Tuesday June 22 (continued) Our new friend Elisa knew that Eli left his dice for Magic the Gathering back home. We couldn't find any at the grocery store to which she had given us a ride on Monday, so she looked on Amazon. She found some, that ended up being free because of …
Day -5 Sunday, June 20 Waiting to board the plane Sunday we flew to Houston for the Car T cell therapy clinical trial. The chemo and radiation we did in May quieted the cancer sufficiently and we decided to move forward with the trial. Waiting for takeoff During the past month, I filled out and …
Over the last couple weeks, Eli has done two chemotherapy infusions and five high dose radiation treatments. Now he's off pain killers and visible tumors are shrinking. His leg is still swollen more than "normal" (his new normal involves chronic leg and foot edema due to damage from past radiation treatments). This neck tumor was …
Eli The Boss 