If you know Eli, he is mischievous, playful, and creative. He also likes to tell people what to do. The week after Halloween, at his chemo appointment, he was talking with one of the doctors about trick or treating. The doctor had only been living in her current home for less than a year, so …
Eli's brother Noah, of the infamous Thyroglossal Duct Cyst, is now in surgery to have it removed. That cute Adam's apple style lump will be no more. Here I am with Noah in pre-op. It was a long wait. His surgery was scheduled for late afternoon and got started late, as I expected because what …
After practicing accessing Eli's port the last few weeks with only mediocre results, I finally got a compliment from Eli on today's access. It didn't hurt him (or me) at all.
November 2, 2019 October is becoming a difficult month for us. It seems like most of the major challenges we've experienced happen in October. We survived another October. This year, we had Noah's neck lump and a water leak in my sewing room in our basement, source yet to be identified. I managed to get …
Back in, now, familiar surroundings, I am with Eli's brother Noah instead of Eli. This is where Eli's MRIs tend to get scheduled, but never for the full 3 hours that are needed. Happily, Noah's ultrasound and chest xray aren't nearly so involved. We just finished the next ultrasound, which confirmed that the neck lump …
If you managed to make it to the end of my last post, you may be wondering how things ended up with Noah. Let's start with Eli's milestone. Celebrating a Milestone A common event in many children's hospitals when a child has completed their cancer treatment is a bell ringing celebration. Eli officially finished his …
Continue reading Sometimes I like being right and Celebrating a Milestone
It gives you more lemons. Generally, things are going as well as they can possibly go, which seems to be normal for Eli since diagnosis. We met with the surgeon last week and took baseline xrays so we can track post radiation growth patterns in his left leg and foot. If you recall, because most …
One year ago on this date, I first took Eli to the pediatrician for what I thought might be a femoral hernia. It turned out to be a swollen lymph node with no other symptoms. The answer to all of the cancer questions the doctor asked was "no". It would be another 7 weeks of …
I like the word "normal". It was used throughout the PET/CT report. ❤
This time, Eli didn't eat anything and I remembered to give him a Zofran to, hopefully, prevent his throwing up when they make him drink the stuff before the scan. We haven't heard that the machine is down, so that's good. We are waiting for a port access, then we'll go downstairs to imaging.
Eli The Boss 