It's interesting to interact with someone who knows more than you. Eli's doctors are smart and have much more experience than I when it comes to fighting this cancer. I've appreciated their expertise and learning from them. I had been increasingly concerned by the various symptoms and side effects that have popped up the last …
Wednesday, December 30, 2020 Day 1: Eli and I flew first class with my sister, courtesy of my sister Jennifer and her husband's frequent flier miles. I loved the pod seating, with customized reclining and large screens. I have never been so comfortable while flying and even took a nap. Eli enjoyed listening to an …
Leaving the hospital with a normal temperature
While on our Florida trip, we went to Universal Studios where Eli rode his first roller coaster. He was reluctant to ride it because he said he was afraid of heights. He rode it anyway and had an exhilarating experience. Hagrid's involved a lot of steep ups and downs, sudden curves, stops and drops, and, …
Last post Eli had been exposed to Covid-19 at the hospital while there for surgery. A couple days later we found out that his sister tested positive for Covid-19, so he was exposed at home. If she had more of a social life, it wouldn't have been a surprise, but she only goes to work, …
That is Eli's typical response when asked how he's doing. What does it mean? It usually means that he's doing fine and is in a good mood. Today, we are starting a different treatment. We are back to trying chemo, a different regimen, but chemo just the same. Same as always. We're easing back into …
Me waiting while Adam is taken to imaging When I was writing the last post, I was sitting in the emergency department at our local hospital with Adam, trying not to use all my phone battery. It was Friday and the day had started off pretty typically. At 8am my alarm went off reminding me …
Cycle 1 After three weeks of Eli's new medication, he will get to take a break from it for a week. This medication is given in 28 day cycles: 21 days on, 7 days off, and will repeat until it stops working. Within a week of starting Stivarga/Regorafenib, Eli could tell his thigh tumor was …
We usually think of being photogenic as looking good on camera. What do you call someone who looks good on scans? Eli is having his MRI now and negotiated with the nurse when she would put in his IV for the contrast. During said negotiations, she mentioned how good he is at getting his MRIs. …
The look of someone who really didn't want their picture taken. Today is MRI day. MRI day always reminds me how amazing Eli is. It is common to think of any kid with cancer as a fighter and to be in awe at what s/he has to go through so early in life. These kids …
Eli The Boss 