I've seen dark before, but not like thisThis is cold, this is empty, this is numbThe life I knew is over, the lights are outHello, darkness, I'm ready to succumbI follow you around, I always haveBut you've gone to a place I cannot findThis grief has a gravity, it pulls me downBut a tiny voice …
It's that time again. Time to see what's going on with the cancer in Eli's body. Since I can feel Eli's thigh tumor, and a couple of the tumors we radiated in September, without scans I could tell that radiation did a good job of shrinking the foot and arm tumors. The thigh tumor, which …
Me waiting while Adam is taken to imaging When I was writing the last post, I was sitting in the emergency department at our local hospital with Adam, trying not to use all my phone battery. It was Friday and the day had started off pretty typically. At 8am my alarm went off reminding me …
Cycle 1 After three weeks of Eli's new medication, he will get to take a break from it for a week. This medication is given in 28 day cycles: 21 days on, 7 days off, and will repeat until it stops working. Within a week of starting Stivarga/Regorafenib, Eli could tell his thigh tumor was …
We usually think of being photogenic as looking good on camera. What do you call someone who looks good on scans? Eli is having his MRI now and negotiated with the nurse when she would put in his IV for the contrast. During said negotiations, she mentioned how good he is at getting his MRIs. …
Trying to decide on a relapse treatment plan was much more difficult than I had anticipated. When I read the MRI results back in May, I was devastated, but determined to push through whatever miserable chemo combo was on the menu for relapse. Instead, we were told there wasn't a plan because nothing would cure …
Eli The Boss 